Category: Life

  • Chronic Illness Made My Marriage Better . . . or Worse?

    The other night I skipped downstairs while my husband was watching the PGA golf tournament.  A commercial was on, so I knew I had a small window to ask the question.  It was a question that already had a “right” answer, but I just wanted to make sure he knew what the right answer was.
    “Do you think your illness made our marriage better or worse?”

    He didn’t hesitate in giving me his answer, and as he did my forehead scrunched up, and my face said, “What?”

    He told me that he thinks it made our marriage worse because it was just too much all at once – moving, new jobs, and then a heart transplant.  He went on to say that he just didn’t have the patience needed for a new marriage.  But, he also said that it did teach him a lot about me and my loyalty to him as his wife. 

    That wasn’t the right answer.  Well, at least not the first part.  But the commercials were over, and my window of time passed, so I didn’t ask him to explain any further.

    Before asking my husband that question, my thoughts were that his illness definitely made our marriage better. Yes, it was stressful, and not something that most couples have to endure for quite a long time if ever, but it made us quickly realize the true purpose for marriage.

    As I mentioned yesterday, I went into marriage knowing that it wouldn’t solve all my problems, but secretly hoping that it would.  I think that most people, even the wisest, have that little seed of hope deep down that maybe, just maybe, this will be it – the one thing that makes all things good.  We all have a tendency to search for God outside of His presence. 

    When faced with a life-altering experience, however, like a chronic illness that could lead to death, this hope in things other than God is quickly shattered, and you realize that God is all you have.  There is no longer hope for your own happiness, your own fulfillment, your own comfort.  Your hope becomes your ability to lay down all of yourself for another person, and you have no choice but to do just that.

    Only a short time after our wedding God took our vows and peeled them back to their bare bones.  There we got a tiny glimpse of The Cross – and the purpose for marriage.  Marriage is God’s way of helping us experience His love for His Son and the sacrifice of His death on the cross.  It’s purpose is to sanctify us through laying down our lives for each other, over and over again, in continual sacrifice, just like Jesus laid down His life only once for us.
    Some people are never saturated in this kind of love, but this is the love of our Father.  If we live a life of sacrifice in our marriages, we get to experience what His love for us to truly like. 

    My husband and I didn’t have a choice, and this was the gift of his illness.  So, did it make our marriage better or worse?  I would say better.  Definitely not easier, but better because now we have the taste of sacrificial love to fall back on.  
  • Chronic Illness and a New Marriage

    Being single into my early thirties I still, deep down, bought into the hope lie that marriage would make everything better, that it would solve most of my problems, and even if it didn’t at least I wouldn’t be lonely anymore and maybe I could have children. I knew better than to think this. I was warned. But from the outside looking in at all of my friends’ marriages, it looked so easy. Easier than being single, anyway, and that’s what I wanted.

    Within two months of our new marriage my husband and I had both moved to a new state for the first time in our lives, both started new jobs, and both heard the daunting news, “John, your heart cannot take the Cardiomyopathy anymore. You will have to have a heart transplant.” With those words my easy vision of marriage exploded, and I was thrown into a world I did not expect. Yes, I knew that John had Cardiomyopathy before I married him, and I honestly think God protected me with naivety so that I would not run from the purpose He was preparing me for, but I still went in with blurred eyes of blissful perfection, and my ideal quickly erupted.

    Recently I was asked how chronic illness has affected our marriage, so this week I am going to share my experiences. I want to give the caveat that my story in no way compares to many others. For us there was an end, and the ending was miraculous. However, through our process with John’s sickness and transplant, I continually thought of the many people who live with chronic illness every day without much hope, other than a miracle, for full recovery. I think often about the parents with children who have chronic illnesses and adult children who take care of their aging parents. The stories are endless. Being in the hospital with John for forty-three days, I saw enough faces of these people to know that they are the real sacrificers, laying down their lives for those they love day-in and day-out, and they need our prayers.

    Please join me each day as I share my experiences with chronic illness in my marriage, and please share your experiences as well. More importantly, let’s pray this week for the countless number of people who each day lay their lives down in order to care for those they love who are sick. Let’s pray for their strength, their perseverance, and for continued hope.

  • Media Monday! I’m Guilty! It Does Affect My Marriage!

    For the past few weeks, Courtney at Women Living Well has devoted Mondays to discussing how technology – cell phones, social media, video games, T.V., etc. – affects our relationships.  The first week she discussed how it affects our relationship with God.  Next she discussed how it affects our marriages.  And today she is discussing the role it plays in our children’s lives and development.  (This will be a two part discussion.)

    I have to admit that the first week – how media affects our relationship with God – I didn’t feel like I had enough to write a whole post.  Recently I have been thinking about this further and have noticed that since my alarm clock is my phone I am in the habit of checking “everything” – and I mean everything – email, Twitter, and Facebook – before I even get out of the bed!!  Ahhh!!  This is definitely a reflection of not putting God first in my day, something that I am trying to work on!

    The next week – how media affects our relationship with our husbands – I again didn’t feel like I had anything to write about.  That is until Media Monday passed, and later in the week my husband said these words,

    “You’re here all day on your computer, and when I come home you don’t even spend time with me because you’re still on your computer!” 

    Ouch!!!

    So today we are supposed to write about how media affects our children, but I don’t have children yet, and this issue with my husband was ‘brought to my attention” after last week’s Media Monday about marriage, so today I am writing (and admitting), that yes, media does affect my marriage.

    So what have I done differently since that day a week ago?

    Right now I am at home during the day.  I just wrapped up my teaching year in June, so I typically have summers off from work, but this summer is different in that God told me to get off the ferris wheel, so I am also in between jobs.  I do have a lot of time to do what I love – write – and I do spend a lot of time on the computer during the day.  Even though I can justify that what I am doing is productive and helpful and useful, it is not more important that what I will take into eternity with me – my husband and the other relationships in my life.

    So last week, after the gentle reminder from my husband, I tried really, really hard to not pick up my phone or the computer from the time he came home from work until the next morning.  I can’t say that I was perfect, but it was a definite step.

    Now it’s time to leave this for now, and go practice what I preach! 

    How does media affect your relationships with God, your husband, or your children?  Please tell me here, and be sure to visit Women Living Well for Courtney’s wise, wise thoughts!!

  • My Husband Rocks!

    Last year John said to me,”I will fight for you!”

    These words alone make my husband a rock star!  A rock star of perseverance. 

    He spoke these words to me last summer days before going into the hospital to wait for and receive his heart transplant.  Through forty-three days of a staph infection, life support, heart transplant, not waking up, and finally coming home to finish recuperating, he definitely fought for me.

    This year John is saying to me, “I will lay down my life for you!”

    These words continue to make my husband a rock star!  This time a rock star of selflessness! 

    My whole life God has given me a vision of being a wife, homemaker, and mother.  However, for reasons only fully known by God, John and I did not meet until later in my life than I had hoped and dreamed.  Since college I have primarily been a teacher, leaving the career at one point to be a consultant, and even though I enjoy the “act of teaching”, for many reasons have always felt a deep struggle, tension, and uneasiness in the career as a whole.  Despite trying to ignore it, this tension has only deepened throughout the years.

    Since we have been married, John has experienced this struggle within me.  He has watched me come home from work every day as if I was coming home from a place that is contrary to everything I am, everything I believe in, and everything I see to be true, feeling depleted and worthless. 

    Even though we do not have children yet, John is supporting me and encouraging me to pursue what I believe God has created me to be.  He has agreed for me to move away from my full-time career as a public school teacher to begin a tutoring business and ultimately have a more flexible schedule to serve him, care for our home, and be involved in ministry.

    In many ways this is a sacrifice.  It is scary.  It is an act of faith.  “For we live by faith, not by sight.” (2 Corinthians 5:7)  However, John is displaying the courage of a true man of God.

    My husband is selflessly laying down his life for the vision of the eternal – each other, our family, our friends, our community who we have the opportunity to influence.

    The events that surrounded John’s life last summer were not his choice.  He chose not to give up. He chose to fight. He chose to look beyond the present. He chose faith instead of fear. But he did not choose the circumstances.  They were out of his control.

    This year John is choosing to lay down his life – not literally – but the life he possesses, he controls –  so that together he and I can lay down our marriage and our family for the complete will of our Heavenly Father. This is a choice out of pure love, putting my happiness and well-being before his own.

    My husband rocks because he trusts God with our future.  Even though there are a lot of unknowns about the coming year, he is completely surrendering to God’s call for him as a husband.  “So we fix our eyes not on what is seen, but on what is unseen, since what is seen is temporary, but what is unseen is eternal.” 2 Corinthians 4:18

    My husband is focusing on our future while trusting God with our present.

  • Happy 6 Month Birthday, John!!

    Six months ago today, at this very moment, I was standing in the ICU waiting room on the fifth floor of Duke Hospital.  John’s parents were there with me, and his sister, Jamie, and brother-in-law, Will, had just arrived from Georgia. John had gotten matched with a heart, and we were waiting for the nurse to come and tell us it was time for us to see him for the last time before his transplant.

    I remember her coming into the waiting room.  We weren’t the only family in there.  Others were waiting, too, to see their loved one a last time before visiting hours ended.  Typically only two family members are allowed back at a time, but this time she told us we all needed to come back. 

    I walked out of the room first and started shaking, and not crying, but just breathing hard.  Jamie walked with me with her arm around me, and we squeezed each other hard.

    At the end of John’s bed was the machine as tall as me that had kept him alive for the previous two days.  This machine had a name, ECHMO, which confused me at first, because it took me several hours after he was hooked up to it to realize that its real name is LIFE SUPPORT.

    I looked at John.  I want to say he looked peaceful.  But he did not.  Every part of his body had some type of tube coming out of it.  I knew that this was the next step – only not the last step.  John was unresponsive to commands even though he was off of all sedation medications.  The doctor told me, “We’re going to take him into surgery, but you need to know that he may not wake up.”

    We stood around John’s bed as doctors and nurses hurried around us preparing him – disconnecting and reconnecting medicines, transferring his oxygen and tubes to portable versions that could take him into the operating room.  I felt like I had no time.  There was so much I needed to say to him to comfort him to love him, but he had to go.

    I asked Will to pray over John, and as I held John’s hand, Will prayed.  We then left the room, stood in the hall and waited for his bed to be rolled down the hall.  Finally, he came out – and ECHMO followed.

    I remember watching John go right as I went left to the surgery waiting room.  And I remember feeling closer to my Heavenly Father than I had ever felt before and than I have ever felt since.

    Surrender.  That was my only choice.  In most prayers of my past I felt like there was an element of responsibility or control that I had.  I could try harder, make better decisions, work more at it, and then God would help me.  But with this prayer, to save John’s life, there was absolutely nothing I could do.

    I laid John down at Jesus’s feet that night – again – after laying him down the week before when he got so sick. I knew God may take John from me.  I knew John may be disabled for life.  I knew.  And yet the only thing I could do was lay him down – give him to Jesus – and ask for Him to hear my prayer and answer it.

    You would think that I would feel out-of-control, frantic, fearful that’s God’s will was not my own.  But I wasn’t.  I knew that God’s will was perfect – no matter what happened.

    And in those moments I experienced divine peace.  The peace that the Bible describes, but I had never experienced.  The peace that transcends all understanding (Philippians 4:7).  And, wow, did it transcend understanding. 

    So tonight, six months later, I praise my Heavenly Father, whom I have the awesome privilege of knowing as a person who talks to me daily, and I thank Him for each extra day with my precious husband, John, that He has blessed me with, and for allowing me to experience His presence in a way that I never had before so that I can be a witness to the reality of the Cross available to every person on earth.

    Happy 6 Month Birthday, John!  You are one of God’s many miracles! 

  • Happy 3 Month Birthday, John!

    Today we celebrate John’s 3 month birthday from his heart transplant, and we remember the thankless gift from his donor’s family.

    Every day I am asked about John, and my first response is “He’s perfect!” And for the most part, that is true! It has been an incredibly blessed month for us. The best way to describe it came straight from John. He went to the grocery store by himself one day, and when he got home he said to me, “I almost lost it after walking to my truck. I got choked up.” I asked him what happened, and he said, “I just remember not being able to walk around the store and to the car. I can’t believe I feel this good.”

    John’s month has given him an indescribable appreciation for his new heart that he was told he would experience, but that took a little while to fully comprehend because recovery is sometimes no fun!

    Here are some of the things John’s enjoyed this month:

    ~ He’s back at work – full time! John’s company has been wonderful to us, and they were expecting him to come back even later than he did. I was so proud of him for going back so soon!
    ~ He’s been chipping in the backyard getting ready to play some golf again.
    ~ He went to the GA/TN game, and of course that broke GA’s losing streak!
    ~ He skips up the stairs two at a time.
    ~ He pressure washed some of the outside of our house.
    ~ He takes walks around the the entire neighborhood with me. He has never been able to do that since we’ve moved here.

    It has been quite a month!!

    On a slightly disappointing note, John’s last biopsy, this past Monday, came back showing that he is having a little rejection. His rejection level is 1 out of 4. This is very common, and what the doctors have always prepped us for, but because we have been so blessed with zero rejection since his transplant, we were a little concerned. John’s doctors aren’t nearly as concerned as we have been. They just adjusted John’s medications, and he will go back at the end of November for another biopsy. This slight rejection hasn’t affected John at all. He has just continued going strong.

    I remind John that a slight 1 rejection is nothing compared to where he’s been. We are trying to stay focused on our blessing of his new heart and to not be fearful. After all, God has already shown us that he is in control and will take care of us. We are now praying for continued good health and zero rejection next time along with the continued peace that I, especially, experienced over the past several months.

    We thank you so much for all of your continued prayers for John and for rejoicing with us in all of his blessings!! We look forward to what new adventures this next month will bring