Category: heart transplant

  • A Love Story Made for the Movies

    I’ll never know the purpose behind the events in my life – why God allowed things to happen the way they did – until I get to heaven, but from my extremely finite view of my life I like to speculate the reasons.

    If you asked when I was a little girl what I wanted to be when I grew up I would have told you most definitely “a mommy”. That was really all I cared to be. But somewhere along the way I realized that mommies don’t make money. Plus I couldn’t major in homemaking in college. So my thoughts went like this, “What job can I have and be at home with my kids the most – that is if I had to work a job for money?” So I majored in education and became a teacher. I honestly did not think I would teach for forever. I thought I would have several children – three or four – and be a full-time homemaker the rest of my life.

    Boy did God have other plans!

    For years I asked God every day to bring me the man He chooses for me, but He never did, and in the meantime He protected me from several people who definitely weren’t who He wanted me to marry. After several years of not meeting John – the person God had chosen for me – I came to the place of peace that maybe God did not intend for me to be married. I still wanted to get married, but I began to think of all the things I could do and be without being married. It took a long time of surrendering through different events in my life, but I finally had gotten to a place where it was o.k.

    I began to see through the eyes of the Holy Spirit that God does love me, and He knows what is best for me always. Due to my free will, I could have demanded my “right” to be married and married someone I wasn’t sure was the one God had chosen for me. I could have gotten angry at God and insisted that His ways were not always right and that I was not going to follow Him until He did what I wanted. But all of that would have just taken me down a dark, lonely road with a long detour to where I ultimately needed to end up, and would most likely end up again, in His arms. So after many years of kicking and screaming – I surrendered.

    Shortly after that John came along.

    John and I met on Match.com. Now I know tons of people who met this way, but three years ago that wasn’t the case. John contacted me on a Sunday, and we met the following Friday. That was July 13 – one day after my birthday. One cardinal rule of Match dating is that you never, ever, ever let someone pick you up for a date because you just don’t know them. I wasn’t on Match for long before I met John, but the few dates I did go on I followed this rule without thinking otherwise. I had two “rules” for myself on Match: I was very selective with who I chose to spend my time with and I was very cautious.

    With John I was still very selective. My first response to him after he contacted me was, “Are you a Christian?” I figured that if this scares someone off, then they’re certainly not the person for me, so I just put it out there. John’s response was, “Yes, but I like beer.” I laughed and said, “Well, since drinking beer (or not) isn’t a qualification for being a Christian, then I guess we’re o.k.”

    However, I didn’t follow my second rule with John. I don’t know why, and I would never recommend it to anyone because it is a very dangerous thing to do. I just remember John saying that he’d pick me up, and I said o.k. without ever thinking, which is very much unlike me. When I told my friends about the fact that he was picking me up they were immediately concerned. I went back to John and told him their concerns, and he said, “Well, when I get there if you don’t feel comfortable I’ll leave.” Really that still shouldn’t have made a difference, but nonetheless he came to pick me up. Not to overspiritualize it, but personally I think this was God giving me peace that it was o.k. because He knew the plan. However, I still would not advise anyone to ever do this themselves!

    John came from work in his little, red Ford Ranger decked out with Georgia Bulldog stickers, floor mats, steering wheel cover, and drink holder decorations. It was over-the-top, but it was John. He was wearing a pair of khaki pants and a hot pink and blue striped Polo shirt. When I opened the door and saw him standing there for the first time, he was holding one dozen pink roses. He knew that pink was my favorite color. I can still see him in my head like it was yesterday. He said the roses were for my birthday the day before and for our first date.

     

    That night he took me to a Mexican restaurant for dinner. Again, I asked him if I could pray over our food. Again I figured that if he got scared away, then he wasn’t the one. After dinner we watched The Notebook because I told him that no guy would ever watch it with me.

     Eleven months later we were married.

    People who haven’t known me long, but know that John and I haven’t been married long, have asked me recently if I knew John had this disease when I met him. I know what they are really asking. How did I make the decision to continue the relationship? Was it hard to fall in love with him? Was I scared? John told me on our second date about his diagnosis with Cardiomyopathy. I can’t say that I was scared. I thought about it, but only for a minute. Looking back on it I really feel like God was protecting me from knowing all the details so that I wouldn’t be scared. Back then John seemed fairly healthy and “normal”. He has always taken a lot of medications, and I knew he could run marathons or anything, but most people can’t. Cardiomyopathy never interfered in our life in those early days.

    In the spring before our wedding date in June, John’s company decided to consolidate all of their offices to their corporate headquarters in Chicago. If you know anything about John and me the last place we’d want to live is Chicago. It’s a great place to visit, but for us not to live. This was when the economy was at the beginning of getting worse and people were losing jobs and not being able to find new jobs pretty much all over the country. The housing market was also down.

    So here we were, three months from getting married, and we both had to find new jobs (I was moving from Atlanta to Winder where John lived). Strangely enough, though not for God because He was orchestrating this whole thing, John found a job in Greensboro, North Carolina in the same industry he had been in for years. What? Relocate to another state when we are just about to get married, and Georgia is where everyone we know in the world lives? Well, we did what we had to do and what we felt led to do, and we decided to move. So now I had to find a job, and we had to buy a new house and hopefully sell our old house in a horrible housing market, all one month after our wedding. It was stressful.

    After a few months of the house in Georgia being on the market, after we both had jobs and were living in North Carolina, the house still wasn’t getting a lot of traffic to be sold. One night we were eating dinner, and we were talking about how concerned we were about the house selling when it occurred to me that we really hadn’t asked God to sell the house. I told John this, and we prayed and asked God to sell our house in Winder. The house sold two weeks later.

    Since then life has gone on like a typical life goes on. We have enjoyed our new home. I’ve enjoyed decorating it. However, we still miss our family and friends in Georgia and dream of moving back there one day. John has been fairly healthy until recently when we found out he needed the transplant.

    When we moved here we never thought about what hospitals were close by even though we’ve always known in the back of our minds that John may one day need a transplant. We thought briefly about leaving his doctors at Emory, but never discussed the hospitals.

    When John’s cardiologist in Greensboro referred him to see a doctor at Duke we immediately researched how Duke was ranked compared to Emory. We have a lot of respect for Emory, and it’s what we’re used to, so we wanted to see how Duke was ranked compared to Emory. Well Emory is ranked 13th in hospitals for heart transplants, and Duke is ranked 8th. Immediately we saw God’s hand.

    As I look back on the past three years of my life, the events seem to fit together like a perfectly planned puzzle. I can see God’s hand in each phase of it.

    John needed a wife, and I asked for a husband. God knew that John was going to need a heart transplant. He spared John’s life four years ago and allowed him to get better so he wouldn’t have to go through a transplant alone. I am confident that He chose me to be his helper through this process this time around. God answered my prayer by giving me John and allowing me the experience of the miracles that are taking place in our lives.

    And He led us to North Carolina, which is a very unlikely turn of events for a Georgia boy who eats, breathes, and sleeps Georgia, Georgia football, and everything southern. Now we see a glimpse of the purpose behind it all, even with the houses and jobs in a bad economy, because the have the opportunity to be at Duke.

    God, through His grace, has blessed us with this amazing love story that is all our own. It is precious to me, and it has made me rest in God’s perfect plan.

  • This Week’s Praises and Prayers

    Well this week has been busy, but we still have so much to praise God for!

    We thank Him for these things this week:

     

    1. John went back to work on Monday and is feeling great!

    2. John’s company and colleagues have been supportive and understanding.

    3. The HR department is helping John through all of the disability paperwork for the past week and for the future transplant without any problems.

    4. John’s IV medication is going well and continues to be healthy with no infections.

    We are asking God for these things now:

    1. John’s IV medication continues to help him to feel well and sustain his heart until the transplant.

    2. For God to begin to work in the life of John’s heart donor. For John’s donor’s family. That God will begin to give them comfort, peace, strength, and love.

    3. That lives will be changed because of John’s story and people witnessing God’s work through it.

    4. That we will glorify God through our response to this trial and that we will always give Him all of the credit.

    5. For John’s new heart to come in God’s timing and that we are patient and trust Him in the meantime.

    6. For God to continue to make me into the wife he’s called me to be for John.

  • 2 Prayers I Prayed as a Single Woman

    I was single for a long time – longer than I would have chosen to be if I was writing the story of my life. I guess partly it was my choice because I didn’t want to settle for anybody that wasn’t right, but mainly I think it was God’s hedge of protection until He knew I was ready.

    I asked and sometimes begged God to bring me the man He intended for me to marry for many years. About six months before I met John these prayers began to diminish. It wasn’t that I wanted to get married any less, but through God’s work in me I began to see a bigger picture. I came to a place where I surrendered my will and my wants and began to believe and trust that God loved me and that His way is always better than mine. I could honestly say that if I never got married I would be fine, and was even joyful at that thought.

    Throughout these years, there were two prayers I prayed as a single woman:

    One was for my future husband – where ever he might be. I prayed that He was a Christian and that God was making him into a Godly husband that would be a leader. And I prayed that he was safe and healthy. When I began to learn about John’s battle with Cardiomyopathy early on when we began dating, and I found out how truly sick he was at one point, I thought back to this prayer. I told John that I had been praying for him during this time even though I didn’t know him. Even though I don’t know all the details of God’s mysterious work in all of this, I know that my prayers were being heard. And now I can see that God answered my prayer by sparing John’s life during that difficult time.

    I also prayed another prayer – this one for myself. I prayed over and over that God would prepare me to be a Godly wife. I am by no means suggesting that I have reached the epitome of godliness. That will ultimately be reached in heaven. However, I do seek the Lord with all of my heart, soul, and mind on a consistent basis and want nothing more than to glorify Him. In this trial John and I are going through, I have to lay down my own wants and needs daily. I have to surrender. Some people have asked me how I do this. How can I be so strong? How can I smile? How can I go on with other daily responsibilities? How can I be positive? Why aren’t I angry? Well, I know that my prayers from all of those years as a single woman were being heard. God has answered my prayers by preparing me then, through trials I went through single, and now, through the work of the Holy Spirit to be the wife God has called me to be for John.

    The Holy Spirit led me to pray these two prayers as a single woman, and now I see clearly God’s work through them and His answers to them. I see that God was preparing me for something I would have never imagined. Any strength or godliness I show is not me – has nothing to do with me. It is the gift of the Holy Spirit working within me to fulfill God’s plan. I am so thankful for this gift, and I am so thankful that God led me to pray these two special prayers for so many years so that now I can experience His hand in it all.

    Are you praying for your future husband? Are you praying for your future wife-self? 

  • We’re Home!

    After seven nights in the hospital, we’re finally at home and so glad to be here! When we drove into the neighborhood everything looked a little different – a little greener, a little taller, and little lusher. I know it’s rained over the past few days since we’ve been gone, but I didn’t expect the grass and bushes and trees to grow more!

    Even our house smelled different, and not just because we left in such a rush that the trash needed to be taken out! John and I both said, “This smells like a new house!”

    It’s amazing at how different things seem after seven days of being gone, and not gone to a better place, but gone to a room that’s the size of some people’s bathroom! I can actually walk more than a few feet at a time now and stretch my legs tonight and take a bath!

    It is so good to be home!

    We have come home with some adjustments which were expected until John gets his new heart. John came home with an IV medication that will help his heart pump a little harder each time. The IV is in the top of his right arm. We have to change the medication every two days, and someone from the home health care agency will come once a week to change the bandages, etc. The medicine and adaptor are in a fanny-pack type bag that John will wear around his waist. He already seems pretty well adjusted to it. After being hooked up to IV medications on a pole that you have to roll around with you, this is a treat for him! The only major inconvenience will hopefully just be wrapping it with saran wrap before taking a shower.

    I am very proud of John. I know how hard it is for people, and especially men, to surrender to things that might make them feel “weak” or “incompetent“. But not John. He’s just so happy that he feels better and is doing better that he’s not embarrassed at all. Tonight we went to dinner, John’s choice of course, Steak Street, to celebrate coming home from the hospital, and he was fine with his new device.

    John plans to go back to work on Monday. This continues to amaze the doctors and even the surgeons we met today. Dr. Rogers told John that most people would be on disability by now.

    I love bragging on my husband because I am so proud of him! He has been so strong and courageous throughout this entire week for me and for all the procedures and tests he’s had to endure. John is a hero! I’m so glad he’s mine!

  • This Week’s Praises and Prayers

    We have so much to praise God for this week!

    Thank you, Lord, for these things:

    1. giving John life for the six years he’s had Cardiomyopathy
    2. the miracle of John’s heart’s ability to compensate unbelievably well for how sick it truly is
    3. helping John to be relentless and strong in his fight against this disease
    4. leading us to Duke to receive excellent healthcare
    5. living in this period in time when there are so many medical advances
    6. leading me to John to be his wife and helper
    7. John’s catheterization and it’s success
    8. sending transplant survivors to us in the hospital to encourage us and give us hope
    9. friends and family who love us so much

    Lord, we pray for these things:

    1. the evaluation to continue to go smoothly and for John to be placed on the transplant list
    2. a healthy, perfect heart for John to become available in your timing
    3. the heart donor, that he is a Christian and will experience eternal life with you, and for his family, that you will begin to give them hope, love, comfort, courage, and strength
    4. John’s heart to sustain him at home with the IV medication until his transplant
    5. peaceful rest and sleep at night for John with minimal symptoms and aches and pain
    6. wisdom and direction for the entire transplant team
    7. for this experience to glorify God and draw us closer to Him
    8. for God to continue to show me how to be the wife he’s called me to be for John and to give me strength
    9. wisdom and direction in all the decisions we will have to make this week and in the next several months

  • Then God Showed Up

    There have been times over the past few months when I felt like I was going to fall on my face, literally, with anxiety, fear, and panic. Last Wednesday when we walked into the hospital was one of those days.

    As we walked into the lobby, with standing room only at the admissions desks, children with cancer in wheelchairs, medical personnel zooming past us, and patients hooked up to IV medication taking their afternoon walk, I felt every muscle in my body tense. I was shaking all over. I was trying to be strong – keeping a serious face, looking ahead, not making eye-contact with anyone – because I knew that one move would send me into a crying convulsion that couldn’t be stopped. My mind began singing to me the “What ifs?”, and the “What if” song is never a good one.

    Then God showed up.

    In His tiniest whisper that He often likes to use, God began to talk to me. Not audibly, of course, but through the Holy Spirit and the encouragement and hope we immediately began to receive.
    Only a few minutes after arriving in John’s hospital room some new members of the transplant evaluation team came in to meet us. We had met Dr. Rogers before, but then we met Dr. Rosenberg, Meaghan, the Physician’s Assistant, and since Duke is a teaching hospital, about three interns. It seemed like each word they spoke allowed another muscle in my body to relax. They spoke about what John’s life would be like after the transplant. It was a life I’ve never experienced with John. It seemed too good to be true. Dr. Rosenberg told John that when he wakes up from his surgery he will not believe how good he feels. He said that because John’s been so sick for so long that he will feel like he’s twenty years old again. The stoic look on my face began to be replaced by a smile – a joyful smile that I almost couldn’t contain. When the doctors left the room I looked at John and just cried. But not because of anxiety, fear, or panic, but because the thought of John being that healthy overwhelmed me.

    Then God showed up. Again.

    The next day John and I were lying on his hospital bed and in walked a man. We just thought he was there to draw blood, take vital signs, or weigh John, which is what people do around there about every hour or so. He introduced himself as James Garrett, and he told us he was a heart transplant survivor. He was a medium sized built man with the biggest smile on his face.

    James Garrett’s heart transplant was three years ago when he was forty years old. He had Cardiomyopathy, and was very sick. He was in the ICU for a little while and went home on a heart pump before he received his transplant. Then, right before eating pizza about two months later, he received the call that they had a heart for him.

    James Garrett could not keep his emotions hidden. He was overjoyed, three years later, for the new opportunity of life he received. Now he volunteers by visiting transplant patients in the hospital and telling them his story. He told John that he will wake up and not be able to believe he’s the same person. He said that after his transplant he immediately wanted to get up and go. He said that he was a completely different person with an appreciation for life that he never had before. James Garrett was so inspirational, and gave us a hope that the doctors could not give us. He told us the practical side of life before, during, and after transplant. He was a survivor, just like John’s going to be a survivor.

    Then God showed up. Again. And again. And again.

    The week has gone just like that. Every time someone walks in the room and leaves we feel God’s presence through their stories, their hope, their encouragement, their wisdom. We are blown away by the opportunity before us.

    So my anxiety has turned into joy – an uncontrollable joy. Don’t get be wrong. I am completely exhausted physically, mentally, emotionally, and spiritually. I have still had that passing “What if?” thought. But I know that God is going to show up. Through this he has given me glimpses of His hand in all of this, and He’s quietly whispering, “Brenda, I am here, and I’m going to show you. Just hear me.”

    Thank you, Jesus, for showing up again, and again, and again.

    I’m telling you these things while I’m still living with you. The Friend, the Holy Spirit whom the Father will send at my request, will make everything plain to you. He will remind you of all the things I have told you. I’m leaving you well and whole. That’s my parting gift to you. Peace. I don’t leave you the way you’re used to being left – feeling abandoned, bereft. So don’t be upset. Don’t be distraught. John 14:25-27 (The Message)

    When is a time that God showed up for you?